jennifer pagonis has androgen insensitivity syndrome -lrb- ais -rrb- .
the disorder prevents a womb from growing and causes testes to grow in the abdomen or other unusual places .
pagonis said she always felt different with constant hospital visits but did n't learn the full truth about her condition until a college instructor described the hormone syndrome one day during class .
pagonis now uses the first name ` pidgeon , ' does n't identify as female or male and works as an artist and intersex activist against surgery .